Michelle Kish, from Illinois, US, was born with Hallermann-Streiff syndrome – a condition so rare that at the time of her birth that there were only 250 known cases worldwide.
Symptoms include distinct round, childlike facial features and a form of dwarfism that means Michelle only comes up to just above her sister’s waist.
“She lights up people’s lives with how happy she is.
She knows that she is different but it doesn’t bring her down,” she added.
“I’ve never had a boyfriend, but I want one, because I am already 20 and Sarah had her first boyfriend at high school,” said Michelle.“I would love a boyfriend with lots of hair.
I was having a conversation with my mom about football, and not being really up to date on players, she mentioned Joe Namath as her favorite - then she mentioned something about him wearing panty hose way back then. Hopefull he didn't play football in that condition.
I was worried how are we going to care for our child who had a rare genetic disorder that was one in five million.”Michelle requires round-the-clock medical care through the night and has a dedicated nurse to travel with her to school.